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Newsletter and Interesting Information

This section to will contain the HNA newsletter which will be produced shortly, and any interesting information or documents we come across. If you have any documents you wish to be included, or you would like to receive our newsletter, please get in touch with us at contact@hampshireneural.org.uk

Study Day Presentations

Please find below the presentations from our very successful study days:-

Study Day 19th July 2017

Study Day Programme

Fatigue Presentation

Why make changes and how they help

Study Day 11th November 2016

During this study we covered:-

Topics Parkinson's UK - a personal journey
Fiona Wheeler Stroke Survival - a personal experience
Karen Pritchard Serious Head Injury - a personal experience
Joy Cleightonhills Personal Planning and
Say it Once Anne Meader

This was followed by Round Table Discussions

Understanding Parkinsons

Personal Planning and Say it Once

Feedback from day

 

Study Day 2nd November 2016

Study Day Programme

Beyond Illness - Developing Competence

The PSP Association

Table Notes

 

Study Day 24th September 2015

This 2015 study day was title: Reablement is everybody's Business.There were 4 presentations covering Headway, Huntingtons, Motor Neurone Disease and Working Collaboratively – MS Society. There were four workshops Workshop 1: Health Perspective – Rehabilitation in the community Workshop
2: A New Social Care Perspective – Reablement and long term conditions Workshop
3: Maximising independence and quality at end of life Workshop
4: Voluntary Sector Perspective - Maximising independence and early intervention for people who are newly diagnosed.

Big Sheets Write Up

Workshop 4 Presentation

Workshop 4 - Topics for Discussion

Plenary

 

Study Day 23rd April 2013

During this study day we looked at Motor Neurone Disease, Multiple Sclerosis and Acquired Brain Injury as well as Parkinson's

An Understanding of Parkinsons

 

Other Study Day Information

CHC Presentation

Reablement Presentation

Dysphagia Presentation

 

Event on 12th July on IOW

click here for more information

 

IOW dates

click here for more information about events on the IOW

 

Have your say today!

If you are living with a neurological condition, the Neurological Alliance would like to hear from you. The Neurological Alliance Patient Experience Survey is open for anyone living with a neurological condition in England to complete. Download the following documents

Patient Experience Survey Flyer

Survey FAQs

 

Newsletters

IOW Autumn Carers Newsletter

 

Useful Information

Take part in research looking at registrations, certifications and signposting individuals who have a visual impairment. For more information click here

The Neurological Alliance has just launched a new report, The Invisible Patients: Revealing the state of neurology services. Click here

Do you use 999 or 111 services? If you do, check out the ambulance service newsletter Click here

Download the Top 10 Tips and Practical Things that would make a difference document by clicking here The HNA working to make things better for you

Sounding Board - As part of HCCs project to improve involvement in the work of the department, Adult Services is working with Action Hampshire to establish a "citizen panel" of service users, carers, and community organisations. Participants will receive three surveys per year designed to gather input that will help guide departmental thinking before decisions are made. If you, or your organisation, would like to take part Click Here to apply

Do you want to help improve services? - Wessex Collaboration for Applied Health Research and Care is looking for people who are willing to work with them through patient and public involvement (PPI). If you are interested in helping them, click here for an application form.

First ever neurological dataset for England launched Years of concerted campaigning by the neurological community have been rewarded today with the publication of the first ever neurological dataset for England. More information Click here

MHDN Newsletter is now available. Please click here for your copy

New laws come in place on 2nd March about driving while taking prescription drugs. Click here and Click here for more information

Wessex Rehabilitation, Reablement and Recovery Quality Guidance Document now available - click here

A new adult exercise guide to physiotherapy has now been launched with useful tips and advice. You can download your copy here

For information on Muscular Dystrophy Campaign’s Bridging the Gap project email r.johnson@mucular-dystrophy.org or call 02078032865.

Duchenne Alert Card

Top 10 Tips and Practical Things that would make a difference - a report issued August 2014 following the HNA's networking day

Is localism Working for people with neurological conditions?

NA Manifesto 2015 - A call for action for neurology

Public Health England and NHS England - launch the first Neurology Intelligence Network

A new Neurological Alliance survey report

Navigating Neurology Services

Strategic Clinical Network briefing - for members and staff

Intelligent Outcomes - Neurological Alliance

Thinking Ahead The-Case-for-a-Strategic-Clinical-Network-for-Neurology

NAO December 2011

Local adult services for the next decade “ Royal College Physicians and Assoc Bristish Neurologists

LTNC research published march 2012

Thinking Ahead: the case for Strategic Clinical Networks for Neurology - Neurologcal Alliance June 2012

Richmond Group Patient Centred Care 2012

Excellent model of information across agencies- Cornwall & Scillies Oct 2011

Epilepsy Society - keen to train volunteers and raise awarness? See ..

The work of Regional Neurological Alliances

Breathe Easy IOW

More evidence of need + outcome measures July 2012

NHS Commissioning boards suggest need for strategic network - p8 of:-

Every year nearly twice as many people are diagnosed with neurological disorders as with cancer

Palliative Care

ABN Re Commissioning Neurology

Summary of NHS post April 2013 - Wessex

Integrated Care: Our Shared Commitment - a government framework that outlines ways to improve health and social care integration

Information about Lasting Power of Attorney from the Cabinet Office

Going the distance: National calls to action to drive neurological service improvement in England, which takes a critical look at how neurology is represented in the health and social care quality improvement system.

First National Neurological Database for England.

Study Day Presentations

HNA Study Day: - Reablement is everybody's business - in collaboration with Hampshire County Council. Main Presentation. Workshop 3 Workshop 4

 

Please find below the presentations from the study day on 24th April 2013

Aquired Brain Injury Document

Hexagon Pilot

Motor Neurone Disease

Research Initiatives

Can you help with Aphasia research which is being carried out by Holly Robson, a speech and language therapist and lecturer at the University of Reading. She is looking at trying to understand how the brain processes language after a stroke. The results of the research will be used to develop population-directed interventions and to apply for more research money to continue to understand language impairments after stroke. Holly needs to identify stroke survivors who speak in a sentence-like way but may have difficulties picking the right words for the context. Sometime people's speech can be muddled up. People with this kind of language problem usually have good mobility; they are able to walk well. If you think you know someone who might be suitable, Holly would be very grateful if you asked them if they were interested in hearing about the research. It is Holly's experience that stroke participants enjoy the research and find it empowering, even if it is not therapy research. If someone is interested in hearing about her research then she will visit them at home or at their stroke club to give them some more information. They can choose to do the research later. Holly is more than happy to speak to anyone (stroke club coordinator, clinician, patient, relative) about the research. Please don't hesitate to contact Holly: Tel: 0118 378 7467, Email: h.v.robson@reading.ac.uk, Address: Psychology and Clinical Language Sciences, Earley Gate, University of Reading, Reading, RG6 6AL.